The Mathews

The Mathews

Saturday, December 4, 2010

Raving Results from the Doctors

The doctors' results are in... both boys are doing wonderfully!
This week brought on my first full week of teaching (well - almost - I had to take off Thursday for Andy's doctor appointments). Both boys are adapting well to the early to bed and early to rise schedule. One thing is for sure - days truly fly by and so do the nights. Robby has started to wake at 5 am to spend time w/ me curled up in his blankies under the heat lamp in the bathroom while I get ready for work. While I wish he would keep sleeping, it is really cute and comforting to hear him suck on his passy and cuddle in the heat. We are two of a kind - we both love to be comfy, cozy :)

Here's the doctor info:
Robby's ENT said his ears look great & tonsils aren't that big, so he doesn't have to go back until spring! Let's hope this is an ear-infection-free winter! No word yet if his restless leg syndrome is better - poor little guy. He moves around so much during the night; he's constantly hitting one wall or another as he rolls.

Andy's first trip to the urologist went well. The doctor is new to the office, but he seems very knowledgeable & happy to answer any of our questions. Andy's kidneys look awesome - this is something we have to keep an eye on. Children w/ SB tend to develop bladder infection quite often & reflux can occur where the urine backs up into the kidneys. He has to have ultrasounds done of his kidneys every 3 months to ensure everything is okay. As long as bladder infections don't start occurring, this should be an easy appointment for us. There will be no way of knowing if he will be able to control his bladder / bowels until he is potty training age, so for now we can only assume the best!

Andy's PT (physical therapy) appointment at Mary Free Bed was an ordeal to say the least. They rescheduled twice and when I showed up at the scheduled time, the PT never showed up to do his evaluation. Staying calm was a bit difficult for me, but you all would have been proud as I calmly demanded that he still be evaluated since I took the day off of work w/ no pay to have the evaluation done. An hour & a half later, we got wonderful news. Andy is doing wonderfully. He's kicking his legs, maintaining good head control, beginning to roll over, and showing little need for intense therapy at this time. He will continue his weekly PT with Early On, but we do not have to go back to Mary Free Bed until March!

It truly is a time to be thankful at our house! We have wonderful boys that continue to amaze us daily. Robby has become an extreme Christmas tree decorator. We decided to let him decorate our mini tree this year. He's been working on it (literally) for two weeks now. Each day he asks for the step ladder, climbs it, proceeds to use his tools to drill, saw, and "fix" the tree. It now has bolts, nuts, pieces of play wood, tractors, and construction equipment all over it. However, if this free entertainment keeps up, I might just leave the tree up all year! This has been the best way to capture his attention I have found yet!

This week brings on another head ultrasound and neuro. appointment. We're praying for the best (shunt free), and we'll keep you posted!

3 comments:

  1. Good news for your little ones! Sounds like we are on the same schedule. Went to urology last week and got the "schedule" and anxiously awaiting our next head ultrasound/neuro. appt. The worry is always in the back of my mind, but I am trying not to focus on it so much. Hope you and your sweet boys have a wonderful Christmas season! (Katie - I think I'm logged in to my education blog,not personal...sorry!)

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  2. Great news so far! WE are also going to be at the neuro's this week Tuesday. Maybe we will see you there!
    Kelly

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  3. Hey Dawn,

    It was so nice to meet you and Andy today. We didn't hear the greatest news, but we are trying to stay positive. Looking forward to seeing you next Monday at coffee.

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