Oh what a week it has been! Robby, my sweet little Robby, is slowly recovering from his tonsil surgery. His return home was conviently paired with Andy's additional teeth coming in. So far our hope for sleep has not really occured due to Robby's need for high dose pain relievers every 4 hours & Andy's tylenol (seriously, couldn't they be on the same wake-up schedule). One week after surgery and we're still getting up every 2 hours or so. I have faith that this will all be worth it ... some day. On a positive note, though, his MRI came back normal! Yeah, one last thing to worry about :)
I've always been amazed at how many cute outfits stores stock for girls. While I consider myself and my bank account lucky that I have two boys, I never thought I would be searching for children's clothes with such a picky child. Robby's wardrobe consists of necessities: hiking boots (or mud boots depending on the weather), jeans (with pockets!), and a t-shirt. It is so depressing to pass up any cute clothes I do find only to know that he won't wear them. Seriously, he wears jeans to bed - so long PJ's (I even had to change him out of his hospital PJ's into jeans before the day was over). The only problem is that he won't even wear shorts. We're working on convincing him that jean shorts are okay as well. So as I scan the racks of clothing I now have to narrow his clothing items to jeans / jean shorts that contain enough pockets to house his tools. You've got to be kidding!
I've always been amazed at how many cute outfits stores stock for girls. While I consider myself and my bank account lucky that I have two boys, I never thought I would be searching for children's clothes with such a picky child. Robby's wardrobe consists of necessities: hiking boots (or mud boots depending on the weather), jeans (with pockets!), and a t-shirt. It is so depressing to pass up any cute clothes I do find only to know that he won't wear them. Seriously, he wears jeans to bed - so long PJ's (I even had to change him out of his hospital PJ's into jeans before the day was over). The only problem is that he won't even wear shorts. We're working on convincing him that jean shorts are okay as well. So as I scan the racks of clothing I now have to narrow his clothing items to jeans / jean shorts that contain enough pockets to house his tools. You've got to be kidding!
Andy has developed into quite the character as well. His "no fear" attitude, eat all outdoor objects in sight, and "don't mess with me attitude" can easily be forgotten when one looks into his eyes. Yes, he too, will be thanking God for those eyes just like his brother some day as he smiles his way out of trouble.
Andy had an action packed week as well. He was casted for braces on Monday. After visiting the orthopedic's office, he wasn't convinced that the standard AFO's (braces) would be right for Andy b/c they would limit any ankle and toe movement that Andy currently has. At that point the long battle to find a different perscription started. Three weeks later, Andy was not-so-patiently waiting for the plaster to dry. His new braces should be ready in two weeks! And then...
We went to his MFB evaluation on Wednesday. This was actually our first positive experience we have had w/ MFB so far. His PT said that Andy is progressing wonderfully! So much so that she doesn't want him in any type of brace at all; to put him in one will limit any foot control he currently has. Instead, she would like to monitor his pulling up to stand over the summer months to be assured of what help he will need. This is amazing news!
And then...
I received a call from MFB that my insurance (Blue Cross Blue Shield) is labeling Andy's request for PT as a "review". This basically means that they need documentation that the PT he receives will benefit him. BCBS doesn't typically like to pay for cronic diagnosis b/c they do not see the value of improvement over a long period of time. What??? How is it that if a child can not walk they couldn't receive PT to teach them how to function? This made absolutely no sense to me. Regardless, we could opt out of the therapy or go ahead with it knowing that the insurance company could deny us (meaning we would have to pick up the cost of it). Apparently MFB charges by the 15 min. segment (4 x 15 for an hour = $280ish for a session). Since Tom & I don't qualify for the Children's Special Health Care, we would have to pay everything ourselves. Lovely... just as we are about to take another pay freeze & insurance hike.
And then...
I guess it does pay to set people straight once in a while. MFB called back to say that since we have had so many negative experiences w/ them (cancelations, no shows, problems with scheduling, clinic, etc.) that they will be picking up the cost of Andy's PT if BCBS denies it! Fabulous news!
So yes, a crazy week! I think I'm ready to go back to work now - sometimes those days are easier than being home - j/k :)
No comments:
Post a Comment