Throwing Out the Calendar

Some people were born unorganized; I, however, was not! It continues to amaze me how people can be spontanous or live without a planner or calendar - I'd be lost without my color-coded planner and daily to-do-lists. Needless to say it sends me in another world when people mess with my "plan". If this baby teaches me at least one thing it will simply be that I am no longer in charge of or should plan on anything.

Today's dr. appt. went well (hidden meaning for yup you gained some more weight), and the baby's heartbeat was around 150. So when I asked if we were all set with the C-Section date I was a bit surprised to hear that our nuerosurgeon was going to be gone on vacation during that time. With red flags going off in my head, they quickly told me that another surgeon would be doing the back procedure and possible shunt surgery if needed. My second surprise was to find out the back closure will not be done until the day after the surgery (still have to find out why - new consult already scheduled). 3rd surprise - no operation rooms are available on the day that they want to do the delivery - they called us later to tell us they bumped someone else out & made a spot. At this point I just gave up! So as of now, (no longer in ink - maybe penciled in) the baby is scheduled to be delivered on Aug. 17th, and the back surgery is scheduled for the 18th - unless something (more than likely) comes up.

On to better news! Robby FINALLY received a consult appointment with the sleep clinic. It still takes him about 2 hours to go to sleep & he wakes up at least 3-4 times a night. While his talking in his sleep can be funny at times, his sleep terrors aren't. We've been praying for an appointment since April, and we finally have one scheduled for late July. A sleep study won't be scheduled until Nov. (first available at the earliest), but I'm positive that at least we are moving in the right direction.

Other good news - our baby has been entered into a pilot program with Mary Free Bed where they meet the parents of kids w/ SB before the child is born. Hopefully this will get us off to a good start & we can begin scheduling therapy quickly after the baby is born.

Today I went to visit another baby w/ SB in NICU! Lewis is so cute, and we send our thoughts and prayers for him & his family for a speedy recovery. It's wierd to think that we will be there in about 2 months or less. The other families we have meet w/ children w/ SB have been really helpful - thanks so much!

So for now I better hang onto the planner & just get used to the changes and cancelations that are headed our way. If I truly did throw it out, I would forget everything!