Andy is 3 weeks old today! Last week is merely a whirlwind of time as we adjusted to being home, trying to unpack, and new schedules and construction work on the house. Today also marks the first day of school (which is a little bitter sweet for me); I miss seeing the kids at school, but it is nice not to have to get up at 4:45 each day (oh wait, I'm still doing that).
Andy's doing wonderfully. Today we had his initial evaluation at Mary Free Bed. Dr. Rush (his primary doctor there) said that although he was referred to as a L-3 mylo baby, he has some S-1 function! In other words, he can move his hips, knees, and some ankle/foot movements. He thinks that Andy will definitely need braces once he is able to pull himself up and begin walking, but that Andy should be able to walk without crutches in his adult life! This is awesome news!
Just like Robby, this is Andy's fighting stance. For some reason, my kids both like to look like they are going to deck you when they get their picture taken. Oh well, a little determination never hurt anyone! Later this week we go in for another head ultrasound & neuro. check. Andy has gained two pounds in the last two weeks (now weighing in at 9 lbs. 4.5 oz) and measures at 22 inches long. His head size has grown 2 cm. as well (this has a bit worried, but we'll have to see what the neurosurgeon thinks on Thursday). For now, my big boy eats nearly 4 oz every 3-4 hours - this equates to a ton of milk!
Robby is adjusting well. The rain has not helped us b/c he has been caged inside, but thanks to family they have entertained him well over the last couple of weeks. He was extremely happy to receive a present from Andy - a bubble blowing lawn mower (hidden agenda - maybe it would tire him out a bit - so far it's not working). Robby revisits the sleep clinic on Friday afternoon - positive thinking here.
Overall, it's been a busy week, and it will only become busier with appointments. So for now, I'll miss school, but my boys need me here. Keep the positive prayers coming - they are really working!
Thank you Dawn. Tell Robby "Carl" says hello! Daisy too.
ReplyDeleteLove the new pictures!!!! You have two handsome boys. That is great news from the MFB doctor, we will continue sending positive thoughts and prayers your way. You have two amazing little boys that are going to continue doing great things because they have the greatest mom taking care of them everyday. You may have a few bumps along the way but with you by there side they will be just fine. You are stronger than you realize. Andy is doing this good because of you and your amazing courage
ReplyDeleteWow! Andy is doing absolutley amazing. What wondeful news you have recieved so far! Hope to see ya again soon :)
ReplyDeleteI'm so happy to hear all of the AMAZING news!! What a fighter he really is. :) Just like his mama...you let those docs have it!!! :)
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